Please use this identifier to cite or link to this item: http://hdl.handle.net/10397/91329
PIRA download icon_1.1View/Download Full Text
DC FieldValueLanguage
dc.contributorSchool of Nursing-
dc.creatorWang, T-
dc.creatorMolassiotis, A-
dc.creatorChung, BPM-
dc.creatorZheng, SL-
dc.creatorHuang, HQ-
dc.creatorTan, JYB-
dc.date.accessioned2021-11-03T06:52:43Z-
dc.date.available2021-11-03T06:52:43Z-
dc.identifier.issn1472-684X-
dc.identifier.urihttp://hdl.handle.net/10397/91329-
dc.language.isoenen_US
dc.publisherBioMed Centralen_US
dc.rights© The Author(s) 2021. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativeco mmons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.en_US
dc.rightsThe following publication Wang, T., Molassiotis, A., Chung, B.P.M. et al. A qualitative exploration of the unmet information needs of Chinese advanced cancer patients and their informal caregivers. BMC Palliat Care 20, 83 (2021) is available at https://doi.org/10.1186/s12904-021-00774-7en_US
dc.subjectCancer survivorsen_US
dc.subjectCaregiversen_US
dc.subjectChinaen_US
dc.subjectInformation needsen_US
dc.titleA qualitative exploration of the unmet information needs of Chinese advanced cancer patients and their informal caregiversen_US
dc.typeJournal/Magazine Articleen_US
dc.identifier.volume20-
dc.identifier.doi10.1186/s12904-021-00774-7-
dcterms.abstractBackground: Studies in the West have demonstrated that appropriate informational support is a vital component of cancer care, with positive effects on both patients and their informal caregivers. Since little is known about the information needs of advanced cancer patients and informal caregivers in China, where ‘silence as virtue’ is much more valued and the communication style is less open, this study was therefore conducted to elaborate the information needs of advanced cancer patients and informal caregivers as well as to explore their perceptions and experiences regarding their unmet information needs in the Chinese context.-
dcterms.abstractMethods: This sub-study of a previous cross-sectional survey utilized a qualitative descriptive study design. The approach involved semi-structured interviews that followed an interview guide to collect data. Eligible participants were the advanced cancer patients and informal caregivers who had participated in the previous cross-sectional survey and reported unmet information needs. Each interview was audio-recorded and transcribed verbatim. Descriptive content analysis was used to analyze the data.-
dcterms.abstractResults: Seventeen advanced cancer patients and 15 informal caregivers with unmet information needs participated in the semi-structured interviews, with ages ranging from 32 to 63 years old for patients and from 32 to 70 for informal caregivers. Four categories were extracted from the interviews with the patients and caregivers: (1) types of unmet information needs; (2) reasons for information needs not being met; (3) preferences for the provision of information; and (4) meaning and role of information. Each category had two to four sub-categories for both the patients and the caregivers, which were similar but not completely the same.-
dcterms.abstractConclusion: The findings indicated that the provision of appropriate information could promote informed decision-making and greater satisfaction with treatment options, reductions in psychological disturbances, and enhanced confidence and ability in self-management and capacity in caregiving. Moreover, information on Traditional Chinese Medicine and food therapy should be increased, particularly for patients at the follow-up stage, while the amount of information on prognosis should be flexible as it could increase patients’ and caregivers’ psychological burden. Healthcare professionals were the most preferred information provider, although their heavy workload resulted in time constraints. In this case, they should provide information to patients and caregivers together as a ‘whole unit.’ At the same time, the value of separate conversations should also be recognized as some caregivers preferred to conceal unpleasant information from the patient.-
dcterms.accessRightsopen accessen_US
dcterms.bibliographicCitationBMC palliative care, 2021, v. 20, 83-
dcterms.isPartOfBMC palliative care-
dcterms.issued2021-
dc.identifier.scopus2-s2.0-85107548192-
dc.identifier.pmid34098905-
dc.identifier.artn83-
dc.description.validate202110 bcvc-
dc.description.oaVersion of Recorden_US
dc.identifier.FolderNumberOA_Scopus/WOSen_US
dc.description.pubStatusPublisheden_US
Appears in Collections:Journal/Magazine Article
Files in This Item:
File Description SizeFormat 
s12904-021-00774-7.pdf1.03 MBAdobe PDFView/Open
Open Access Information
Status open access
File Version Version of Record
Access
View full-text via PolyU eLinks SFX Query
Show simple item record

Page views

8
Citations as of Jun 26, 2022

Downloads

2
Citations as of Jun 26, 2022

SCOPUSTM   
Citations

2
Citations as of Jun 23, 2022

WEB OF SCIENCETM
Citations

1
Citations as of Jun 23, 2022

Google ScholarTM

Check

Altmetric


Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.