Please use this identifier to cite or link to this item:
http://hdl.handle.net/10397/66616
Title: | Clinical transition for adolescents with developmental disabilities in Hong Kong : a pilot study | Authors: | Pin, TW Chan, WLS Chan, CL Foo, KH Fung, KHW Li, LK Tsang, TCL |
Issue Date: | 2016 | Source: | Hong Kong medical journal (香港醫學雜誌), Oct. 2016, v. 22, no. 5, p. 445-453 | Abstract: | Introduction: Children with developmental disabilities usually move from the paediatric to adult health service after the age of 18 years. This clinical transition is fragmented in Hong Kong. There are no local data for adolescents with developmental disabilities and their families about the issues they face during the clinical transition. This pilot study aimed to explore and collect information from adolescents with developmental disabilities and their caregivers about their transition from paediatric to adult health care services in Hong Kong. Methods: This exploratory survey was carried out in two special schools in Hong Kong. Convenient samples of adolescents with developmental disabilities and their parents were taken. The questionnaire was administered by interviewers in Cantonese. Descriptive statistics were used to analyse the answers to closed-ended questions. Responses to open-ended questions were summarised. Results: In this study, 22 parents (mean age ± standard deviation: 49.9 ± 10.0 years) and 13 adolescents (19.6 ± 1.0 years) completed the face-to-face questionnaire. The main diagnoses of the adolescents were cerebral palsy (59%) and cognitive impairment (55%). Of the study parents, 77% were reluctant to transition. For the 10 families who did move to adult care, 60% of the parents were not satisfied with the services. The main reasons were reluctant to change and dissatisfaction with the adult medical service. The participants emphasised their need for a structured clinical transition service to support them during this challenging time. Conclusions: This study is the first in Hong Kong to present preliminary data on adolescents with developmental disabilities and their families during transition from paediatric to adult medical care. Further studies are required to understand the needs of this population group during clinical transition. |
Publisher: | Hong Kong Academy of Medicine Press | Journal: | Hong Kong medical journal (香港醫學雜誌) | ISSN: | 1024-2708 | DOI: | 10.12809/hkmj154747 | Description: | This paper was presented as a poster at the Hong Kong Physiotherapy Association Conference 2015, Hong Kong on 3-4 November 2015. | Rights: | © Hong Kong Academy of Medicine. CC BY-NC-ND 4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/) Articles submitted to the HKMJ are published under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International Licence (CC BY-NC-ND 4.0; creativecommons.org/licenses/by-nc-nd/4.0/). Readers may reproduce or store copies of HKMJ articles provided that the articles are used only for non-commercial use. Any uses and or copies of material published under this licence, in whole or in part, must include appropriate accreditation (the customary bibliographic citation, including author attribution, date, article title, Hong Kong Medical Journal, and/or a link to the article on the HKMJ website; www.hkmj.org) and MUST include a link to the license (creativecommons.org/licenses/by-nc-nd/4.0/). Users may not use the material for commercial purposes. Any derivative works produced based on the copyrighted materials may not be distributed. The following publication Pin, T. W., Chan, W. L., Chan, C. L., Foo, K. H., Fung, K. H., Li, L. K., & Tsang, T. C. (2016). Clinical transition for adolescents with developmental disabilities in Hong Kong: a pilot study. Hong Kong Med J, 22(5), 445-53 is available at https://doi.org/10.12809/hkmj154747 |
Appears in Collections: | Journal/Magazine Article |
Files in This Item:
File | Description | Size | Format | |
---|---|---|---|---|
hkmj154747.pdf | 666.18 kB | Adobe PDF | View/Open |
Page views
188
Last Week
0
0
Last month
Citations as of Oct 13, 2024
Downloads
95
Citations as of Oct 13, 2024
SCOPUSTM
Citations
5
Last Week
0
0
Last month
Citations as of Oct 17, 2024
WEB OF SCIENCETM
Citations
5
Last Week
0
0
Last month
Citations as of Oct 17, 2024
Google ScholarTM
Check
Altmetric
Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.