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Title: Study protocol of the international spinal cord injury (InSCI) community survey
Authors: Gross-Hemmi, MH
Post, MWM
Ehrmann, C
Fekete, C
Hasnan, N
Middleton, JW
Reinhardt, JD
Strom, V
Stucki, G
Issue Date: 2017
Source: American journal of physical medicine and rehabilitation, Feb. 2017, v. 96, no. 2, suppl. 1, p. s23-s34
Abstract: Objective: The Learning Health System for Spinal Cord Injury (LHS-SCI) is an initiative embedded in the World Health Organization's (WHO's) Global Disability Plan and requires the statistical collection of data on the lived experience of persons with SCI to consequently formulate recommendations and policies. The International Spinal Cord Injury (InSCI) community survey has been developed as an initial step to gain information about the lived experience of persons with SCI within and across diverse nations.Design: InSCI is a multinational community survey based on the International Classification of Functioning, Disability and Health Core Sets for SCI and involves 28 countries from all six WHO regions. The study will be implemented in 2017. Overall aims, guiding principles on sampling strategies, data collection modes, and reminder management are described.Conclusions: InSCI will be the first survey to be conducted simultaneously in many countries and in all six WHO world regions that identifies the factors associated with functioning, health, and well-being of persons living with SCI. Expected results of the survey will be used for the basis of conducting stakeholder dialogs for policy reforms designed to improve the functioning, health maintenance, and well-being of persons with SCI.
Keywords: Spinal Cord Injuries
Community Survey
International Classification of Functioning
Publisher: Lippincott Williams & Wilkins
Journal: American journal of physical medicine and rehabilitation 
ISSN: 0894-9115
DOI: 10.1097/PHM.0000000000000647
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