Living and dying with dignity in Chinese society : perspectives of older palliative care patients in Hong Kong

Abstract

Background: the empirical Dignity Model has profoundly influenced the provision of palliativecare for older terminally ill patients in the West, as it provides practical guidance and intervention strategies for promoting dignity and reducing distress at the end-of-life. Objective: to examine the concept of 'living and dying with dignity' in the Chinese context, and explore the generalisability of the Dignity Model to older terminal patients in Hong Kong. Methods: using qualitativeinterviews, the concept of dignity was explored among 16 older Chinese palliative care patients with terminal cancer. Framework analysis with both deductive and inductive methods was employed. Results: the three major categories of themes of the Dignity Model were broadly supported. However, the subtheme of death anxiety was not supported, while two subthemes of generativity/legacy and resilience/fighting spirit manifested differently in the Chinese context. Furthermore, four new emergent themes have been identified. They include enduring pain, moral transcendence, spiritual surrender and transgenerational unity. Conclusion: these findings highlight both a cultural and a familial dimension in the construct of dignity, underline the paramount importance of cultural awarenessand competence for working with ethnically diverse groups, and call for a culturally sensitive andfamily oriented approach to palliative care interventions with older Chinese terminal patients.