Please use this identifier to cite or link to this item: http://hdl.handle.net/10397/18351
Title: Assessing quality of life of patients with advanced chronic obstructive pulmonary disease in the end of life
Authors: Pang, SMC 
Chan, KS
Chung, BPM 
Lau, KS
Leung, EMF
Leung, AWK
Chan, HYL
Chan, TMF
Issue Date: 2005
Publisher: Center Bioethics Clin Res Inst Montreal
Source: Journal of palliative care, 2005, v. 21, no. 3, p. 180-187 How to cite?
Journal: Journal of Palliative Care 
Abstract: Given the limitations of existing health-related quality-of-life (QOL) measures in capturing the end-of-life experience of patients with advanced chronic diseases, an empirically grounded instrument, the quality-of-life concerns in the end of life questionnaire (QOLC-E), was developed. Though it was built on the McGill quality of life questionnaire (MQOL), its sphere is more holistic and culturally specific for the Chinese patients in Hong Kong. One hundred and forty-nine patients with advanced chronic obstructive pulmonary disease (COPD) or metastatic cancer completed the questionnaire. Seven factors (28 items) which emerged from the factor analysis were grouped into four positive (support, value of life, food-related concerns, and healthcare concerns) and four negative (physical discomfort, negative emotions, sense of alienation, and existential distress) subscales. Good internal consistency and concurrent validity were shown. The results also revealed that these two groups of patients had similar QOL concerns. The validity of applying QOLC-E as an outcome measure to evaluate the effectiveness of palliative and psychoexistential interventions has yet to be tested.
URI: http://hdl.handle.net/10397/18351
ISSN: 0825-8597
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